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Perhaps you've been worrying about mom lately. Her arthritis keeps her from taking care of the house, and she has so
much trouble reading fine print that you wonder how she can keep track of her
medications.
Some days she doesn't feel like eating, and even a daily phone call
leaves you more concerned than reassured. Mom says she'll never set foot in a
nursing home, but every day you drive past an assisted-living facility, and its
tidy buildings and manicured grounds look like an appealing alternative.
Assisted-living facilities offer a relatively new way to care for
seniors who can't manage on their own. A cross between an apartment building
with services and a nursing home, these facilities offer residential units,
which sometimes include a kitchen, housekeeping services, meals, transportation
to doctors and activities, and various levels of personal assistance--all for a
monthly rental fee.
With the
number of people who will need help with activities of daily living projected to
increase by 51 percent in the next 20 years, assisted living is in a growth
mode. The number of licensed facilities--built by independent chains like
Sunrise, hotel chains like Marriott and Hyatt, and individual entrepreneurs--has
increased 30 percent since 1998. Some communities now have many facilities to
choose from, although rural areas may have few or none.
Today more than
500,000 people live in assisted-living facilities where
the average age is 84. Most residents require help with at least three
activities of daily living, such as eating, bathing, toileting, dressing, and
walking. One industry survey found that nearly half of residents suffered from
mild dementia or early to midstage Alzheimer's disease. Nearly one-quarter of
facilities have special Alzheimer's units.
Assisted-living facilities
are not substitutes for a nursing home. Many do not admit or keep residents who
need ventilators or catheters, or help with continence problems. About 36
percent of all residents eventually go to a nursing home because the
assisted-living facility cannot accommodate their increasing needs, and 2
percent go to nursing homes because they have exhausted the means to pay for
care.
The price of care at an assisted-living facility can exceed $4,000
a month, depending on the size of the unit and amount of personal care needed.
The financial arrangements are usually different from those of continuing-care
retirement communities (CCRCs), which may require an entrance fee ranging in the
hundreds of thousands of dollars. CCRCs offer a continuum of residential
arrangements from independent living units to assisted-living and nursing
facilities.
If
assisted living seems a viable solution some careful comparison shopping is in order.
What follows is a guide to the questions to ask--and the things to observe--as
you visit facilities in the area where your relative wants to live.
Be prepared to do some careful shopping to find a
good facility. Start with initial visits to several in the area. Most residents
we spoke with said that the quality of care and staff, and having someone to
talk to, were more important than fancy surroundings. It may take several visits
to evaluate those intangibles.
First visit: The
tour
On the first visit, most likely the director of marketing
(who may, in effect, be doubling as a real-estate agent) will show you around.
You will see the common areas--the parlors, library, dining room, laundry
facilities, and patio. Then she (many are women) will show the available
apartments. Where the apartment is located is very important. In many
assisted-living facilities, units closest to the dining room or elevator are
more desirable and therefore may cost more.
What your guide says or does
not say offers clues to the quality of the facility. For example, if she doesn't
ask any questions about your relative's needs, it may be a sign the facility is
more interested in filling space than in the care your relative requires.
Observe how staff members relate to the residents. Do they talk with
them and know them by name, or do they ignore them? Do they seem genuinely
interested in the residents and what they are doing, or do they seem phony,
putting on a show for prospective families? After you visit three or four
facilities, you'll be able to tell.
Look for signs of life or
energy. In most places we visited, residents seemed to prefer to stay behind
closed doors, and there were few activities going on despite the full activities
calendars posted on the walls.
If you see few residents in the common
areas or participating in activities, it may signal that the facility is not
full. A half-empty facility could bode ill for the facility's long-term
finances. If a facility needs residents to fill up its units, you might
encounter the hard sell. High-pressure tactics are always a sign to continue
shopping.
When you do see an activity, note whether residents are really
engaged and enjoying what they are doing. At a facility in Boston's Back Bay,
residents gathered in the parlor on a late winter afternoon to hear a travel
program. They asked questions, talked, and appeared to be truly interested in
the presentation.
Be specific
about care needs. Find out how the facility will accommodate your relative's
current needs and what it will do as those needs intensify and increase. Be
forthright and explain exactly what your relative's functional, physical, and
mental deficits are and how they are likely to change. For example, someone with
glaucoma or macular degeneration may experience a progressive decline in sight.
How will the facility accommodate the decline?
What's in the contract?
Ask for a copy
of both the rules and the contract. This is a test of the facility's interest in
full disclosure. If there's reluctance to part with such crucial information at
this early stage, consider it a red flag.
Level of care
Many
assisted-living facilities have complex formulas for determining how much care
your relative requires. Brighton Gardens in Austin, Texas, figures out how much
time it will take nursing assistants to help residents perform various tasks,
and then multiplies that by the number of times a resident needs services. The
marketing official said that the facility places new residents in a higher level
of care and then reassesses them after 30 days, possibly moving them to a lower
level.
It's important to
know when periodic reassessments take place, since the level of care is linked
to the amount you will pay. If you suspect the facility is trying to jack up its
fees, you can secure an independent assessment from a geriatric-care manager.
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Additional
Visits: Fact-Finding
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It is very important for you or your relative to visit the facility two
or three times. These visits should be regarded as serious fact-finding
missions. Visit at different times of the day to observe the routines. If
possible, join residents for a meal to get an idea of how tasty the food is.
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| Does the staff seem interested in residents, or are they
putting on a show for visitors? After you visit a few facilities, you'll be able
to tell. | |
 | Chatting with residents in the lobby or
outside is the best way to gather intelligence. The facility may tell you that
there is sufficient staff; residents may tell a different story--long waits for
help, long waits for dining services, few people to talk to. The second visit is
the time to inquire about a residents' council and find out how active it is.
One resident noted that without the residents' council, the facility "would walk
all over us."
The second visit is also the time to take a harder look at
the physical surroundings. How accessible is the dining room? Can someone with
arthritic hands hold on to hand bars easily? One Savannah facility was equipped
with handrails that were nothing more than grooves in the wall that would be
hard for someone to grasp. A competing facility in the area had handrails that
protruded from the wall and were much easier for residents to hold on to.
Are there dizzying patterns on carpets or walls? These can make it hard
for elders with poor eyesight to navigate. Observe the cupboard height in the
kitchens. One resident our reporter visited had all her kitchen paraphernalia
stacked on counters because she couldn't reach the cupboards.
Staff
training.
Ask about training in such areas as direct care to patients,
safety and emergency care, first aid, CPR, sanitation, mental health and
emotional needs, residents' rights, and medication administration. Get
specifics: How many hours in what fields? Do they have continuing-education
requirements? If your relative will be in the Alzheimer's or dementia wing of
the facility, learn how the staff is trained to interact with difficult
residents.
Philosophy of negotiated risk.
Does this facility want
families and the resident to engage in a process of care planning around issues
of risk and autonomy? Negotiated agreements reflect a philosophy of consumer
choice, autonomy, and independence, but they may also provide a way for the
facility to escape liability if the resident suffers harm as a result of certain
actions. If you go down the path of negotiated risk, have a lawyer examine your
agreement.
The care plan.
Ask who draws up the care plan, and how
much input the resident and family will have. All should have a say. If your
relative is able to make decisions, the facility should ask about his or her
preferences. A care plan drawn up solely by the staff is likely to be a source
of trouble later when things go wrong.
As you're touring
various facilities, begin to ask questions about admission procedures and
contracts.
The application
When you review the application form,
don't be surprised if it asks for detailed financial information about your
relative's savings and income. The facility wants to make sure you or your
relative can pay the basic price for the unit, the monthly fees, plus the
inevitable annual rate increases. But just as important, the application tries
to find out whether your relative "qualifies" for care in the facility.
Is there a waiting list?
Facilities vary in how their
waiting lists work. At some, anyone who does not accept an offer when an
apartment becomes available moves to the bottom of the list. At others, the
facility simply calls the next person on the list, leaving the others in the
same position.
To keep your relative on a waiting list, you will most
likely have to leave a deposit, usually ranging from $300 to $500. Ask if the
money is refundable if your relative eventually decides not to move in. And if
he or she wants to go through the application process, will the facility allow
the deposit to be used as an application fee?
Where will your
relative live?
Contracts should specify a unit and provide for flexibility
when it comes to bringing personal furnishings, who can come to live or visit,
and whether the same unit will be available after a temporary hospital stay.
Many contracts are silent on those points. Be sure you are clear about what
happens if a resident needs hospitalization. Will payment still be due? What
will happen after discharge? Nursing homes are required to hold a room for
Medicaid patients. But many assisted-living facilities are not. Be sure that
yours will. Going to a new facility can be disorienting to an elder who has just
experienced an acute illness.
Are meals included?
Contracts
usually specify which meals are provided. Will the facility provide a special
diet if needed? Does the facility give credits for meals not eaten or provide
tray service if a resident is ill and confined to the apartment? Is there an
extra charge for this? These extra charges can add up.
How do
residents get about?
Contracts should specify who will provide
transportation and to where. Some contracts don't say, or they specify that
residents must arrange their own transportation. When they do mention the
subject, contracts may impose restrictions and conditions.
Can
residents see their own doctor?
Most residents prefer to see their own
doctor, but in some facilities, they may have to use the doctor the facility
provides. If a facility requires all residents to use the same doctor, and if
that resident also belongs to an HMO that requires the use of its own physicians
and other providers, he or she could be caught in the middle, unable to obtain
medical care without incurring unnecessary out-of-pocket expenses.
Who is in charge of medications?
Contracts should specify who is
responsible for administering, coordinating, and scheduling medications.
What if a resident's health fails?
Few contracts specify what
happens when a resident's physical or mental status declines. Ideally, contracts
should specify that the facility will devise an individual program to
accommodate those needs. But instead the contract might say residents can hire
their own aides and assistants to help. Many facilities are neither licensed nor
equipped to deal with the increasing medical needs of their residents.
Who decides about transfers?
It's not uncommon for residents to
live in several units during their stay in assisted living--first in a private
unit and then, as money runs low, in a shared room, perhaps in an undesirable
wing or floor. Nor is it uncommon for residents to be sent to a nursing home or
placed in a higher level of care as their physical or mental capacity declines.
Knowing who makes the decisions about transfers, the factors they're based on,
and whether a resident has any say in the matter is crucial. Beware of contracts
that say decisions are "determined" by the facility.
What if it
doesn't work out?
See whether the contract provides for a probationary
period during which the resident decides if he or she is suited for assisted
living. If no probationary period is allowed, will the facility offer a prorated
refund of fees already paid if your relative decides to move out after a few
weeks?
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| Some 40 percent of assisted-living facilities charge extra
for administering medications. | |
 | Even though the marketers promise that your
relative can "age in place," state law or the facility's own policy may
undermine that promise by limiting the services that can be provided. Contracts
should allow for a minimum 30-day notice if the facility wants to end the
agreement.
Who pays the costs?
Almost 95 percent of
assisted-living residents pay for care out of their own funds. The rest get help
from family and friends and occasionally from state agencies. Monthly fees for
assisted living can easily exceed $3,000 or $4,000 a month for rent and care,
and there is little public funding available to help. Generally, Medicare does
not pay unless skilled-nursing care is needed and given in certified facilities.
But Medicare does pay for some skilled care if your relative meets the
requirements for the Medicare home health benefit. In these cases it may also
pay for some personal-care services.
Thirty-seven states pay for care in
assisted-living facilities through Medicaid. To be eligible for Medicaid, your
relative must be poor or become poor by spending down assets in order to
qualify. Because states limit the number of people served through waiver
arrangements, you may encounter long waiting lists even if your relative
qualifies financially. Your state department of social services or the Assisted
Living Federation of America (703 691-8100) can tell you whether or not your
state pays.
Be
forewarned that residents of assisted-living facilities face a web of
charges--everything from the monthly fee to specific charges for various
services the staff gives to help them through the day, even walking them to the
dining room. It's difficult to disentangle different fee arrangements. Although
pricing can be complicated, assisted-living facilities generally use one of
these ways to charge for their services:
Flat or bundled rate.
With this arrangement the facility estimates the average amount of care
residents will need. Everyone pays the same for personal-care services that are
folded into the basic rent for the living unit.
Tiered rate. A facility
may include four or five tiers, or rate levels, in its pricing structure. Each
tier represents a different level of care needed by a resident.
Flat rate plus an
hourly charge for assistance. Hourly charges add up. At one Boston facility,
residents could be charged an extra $6 for every 15 minutes of personal care
they needed beyond what was specified in the base rate. Fees can be as
outrageous as charging for tying shoes or opening draperies.
Onetime entrance or
community fees. These can equal a month's rent, though they rarely exceed
$5,000. One facility that was charging $2,000 called it a membership fee.
Rate increases.
Caring for physically and mentally impaired
elders is labor-intensive and very costly, and most facilities raise their rates
3 to 5 percent each year. Some residents run out of money while still in an
assisted-living facility, especially if they stay a long time.
Additional costs.
Sometimes
residents require visits from home health aides in addition to the assistance
the facility staff provides. Some 40 percent of assisted-living facilities
charge extra for administering medications. Ask if the facility requires
residents to use certain home health agencies or pharmacies.
Decide if your relative really
is a good candidate for assisted living. For people who dislike the idea of
communal living, home care, sometimes in combination with adult day-care
programs, might work better. But for gregarious people who are beginning to
experience a decline in function, assisted living might be a good option, at
least for a while.
Take a realistic look at your relative's financial picture. Do some
hypothetical financial projections; look ahead at least four years or maybe more
to see if he or she can continue in an assisted-living facility. Consider the
likely possibility of increasing frailty, needs, and expenses, as well as
increases in monthly charges. Will future income and assets cover those
contingencies?
Carefully consider the philosophy of care given by the facility. Does
the facility seem caring and concerned about your relative or are personnel more
interested in keeping units filled?
Be sure you understand what the
facility can and cannot do to accommodate your relative's increasing frailty.
Will personnel help you make arrangements for care that is needed but that the
facility does not provide? Can you afford the additional cost?
Look beyond a
facility's fancy interior. Is the space functional for residents who may have
different kinds of canes, walkers, wheelchairs, and abilities to navigate
distances? Does the facility provide residents with camaraderie, activity, and
support?
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