Alzheimer's disease, also called early-onset Alzheimer's, or
early-onset AD, is the term used for cases of Alzheimer's
disease diagnosed before the age of 65. It is an uncommon form
of Alzheimer's, accounting for only 5-10% of all Alzheimer's
Approximately 13% of the cases of early-onset Alzheimer's are familial Alzheimer's disease, a rare form of Alzheimer's that is entirely passed down through family, being inherited from a parent. FAD accounts for between 2-3% of all cases of Alzheimer's and usually has a much earlier onset than other types of Alzheimer's, with symptoms developing in their 30s or 40s. Non-familial early onset Alzheimer's can develop in people who are in their thirties or forties, but that is extremely rare.
"A Marriage to Remember"
Alzheimer's Disease Documentary, by filmmaker Banker White's
about his mother who was
given a diagnosis of early-onset Alzheimer's disease at just 61 years
The majority of people with Alzheimer's don't start seeing symptoms until after 65 and often after 80. However, early-onset Alzheimer's can strike much earlier. People with early-onset Alzheimer's can be as young as 30 when they start seeing symptoms, although that's among the rarest of rare cases in most instances, early-onset. Alzheimer begins to manifest in the patients 40's or 50's.
Approximately 200,000 people every year receive the diagnosis; that's approximately 5% of the total population of people with Alzheimer's in the United States.
It can be difficult to get the correct diagnosis, however. Many health care providers don't immediately suspect Alzheimer's disease when faced with a younger patient. It's not unusual for patients to be told that their symptoms are due to stress or other underlying causes or to receive very different opinions from different medical professionals.
For those with early-onset Alzheimer's, getting a correct diagnosis can take a long time. Alzheimer's disease is, in many ways, a mystery to the medical community we don't know exactly what causes it or how to prevent it. This is also true of early-onset Alzheimer's, which is much more rare.
The Importance of Getting Tested
The easiest way to know whether or not you have early-onset Alzheimer's is to get tested. A positive result could mean having more time to prepare your family, your finances, and yourself; it could also mean difficulty in getting health, long-term care, life, and disability insurance, even before you start developing symptoms.
Finances can be a problem for many people who develop early-onset Alzheimer's and their families. The disease can often make it difficult or impossible to hold down a full-time job, and it isn't unusual for spouses and partners to quit their jobs to step into a full-time caretaking role. There are medical benefits and programs that can help, but often they do not kick in until the Alzheimer's patient is 65 or older.
Steps to take while symptoms are still mild:
Your first priority should be to sit down with a financial planner to get your finances and retirement situation in order, and a lawyer to make sure that the right person has power of attorney and your assets are distributed in the right way. You may need to sign the deed to your house or property over to your spouse or another close family member or loved one.
You should also
sit down with your employer to explore your options for early
retirement. It's possible that you may be eligible for
retirement benefits even though you will be retiring early.
It is also a good idea to talk to a counselor about your Social Security, Medicare, and Medicaid options. You may be eligible for some benefits even though you will be under 65 years old when you need them.
It's crucial to talk to your family about the diagnosis and what it will mean for them. You will need to plan for the time when your symptoms get more severe, and for what to do if your family can no longer provide you with the care you need.
Finally, know that you are not alone be sure to get in touch with the support organizations in your area that can help you plan how to manage early-onset Alzheimer's.
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